Thursday, December 14, 2017
Logging into a dating/hook-up app, like Grindr, is no excuse to log off of your brain or heart. Typos are excusable—stigma is not!
"Logging into a dating/hook-up app, like Grindr, is no excuse to log off of your brain or heart. Typos are excusable—stigma is not!" JUST*IN TIME by Justin B Terry-Smith #HIV #stigma #LanguageMatters
Language matters. It can promote prejudice and misinformation; it shapes our thinking about who and what has value in this world. Logging into a dating/hook-up app, like Grindr, is no excuse to log off of your brain or heart. Typos are excusable—stigma is not!
To take a look please Click Here
Sunday, December 10, 2017
When Justin’s HIV Journal was on display at the Brooklyn Museum there was a discussion panel afterwards of Activist. It allowed me to see activist from early in the HIV epidemic and present-day activist. The one commonality that we all had in common was the camera. We documented our lives and other people’s lives that were affect or infected with HIV. It amazed me on how far activism has come but it also amazes me on what is coming next from the next generation. Sometimes, I wonder will the generation after me understand what we’ve done to help in the fight against HIV. I know that the generation before me probably thought the same thing. Well, I say to them I was there, I listened, and I’m here now continuing your work. The work that laid the ground for other like me to be able to do what we do. I thank you all on this World AIDS Day
Justin B. Terry-Smith on the impact of technology and social media with activism
Excerpt: “As far as me growing up and going to college I kind of left it by the wayside but I always really had a passion for journalism in the media and so being a writer today really did help me to be able to be open about what I have. To be open about who I am. But I will say that I have two sons they are 20 and 18. And I will say that I LOVE social media... It does allow them to be open and to explore and explain their feelings to the outside world. It does allow us to be able to say, 'here's an important cause'. Here's an avenue for you to feel passionate about, go explore that." - Justin B. Terry-Smith
Justin B. Terry-Smith on making private testimony public
Excerpt: “Giving a testimony of what was going on with me was able to manifest itself and have other people say, 'well this is happening with me too'. Having people comment and send me emails about that made me want to do more and more. And broadened my horizon like my husband and I are adopting this kid and another kid. I'm still doing this and thinking of what it means to be positive. And a lot of people from the older generations would say well, we never thought that would even be a possibility.” - Justin B. Terry-Smith
Monday, November 27, 2017
Saturday, November 25, 2017
Web series CL♥SER - Trailer | LGBT Web series | ENGLISH SUBTITLES
CLOSER is a web series with 5 episodes (6 minutes), produced and directed by Luis Fabiano Teixeira and Tiago Cardoso and will be available on YouTube on 1st December (World AIDS Day).
Daniel (Lucas Onofre) and Antonio (Renato Almeida) love each other, but the condition of the first, who is HIV positive, puts the future of the relationship in question. Between the guys is Karina, best friend of Daniel and also friend of Antonio.
The theme is approached respectfully and straightforwardly, mixing suspense, drama, romance and a bit of comedy. And, of course, some social merchandising: protected sex, HIV test and relationship between sero-discordant couples.
Unfortunately, talking about HIV is still taboo in Brazil.
The fear of rejection and prejudice often pushes HIV-positive people into a world of silence and darkness, so we believe that talking about it is a way to shed some light on the discussion and show acceptance.
In general, our message is very simple: bring these people closer to the heart and away from prejudice, so the web series is named CLOSER.
Sunday, November 19, 2017
Justin’s HIV Journal selected for inclusion in the U.S. National Library of Medicine under National Institute of Health
This week I received an e-mail. This e-mail coincides with what one of the goals that Justin’s HIV Journal has been trying to accomplish since its existence.
Justin’s HIV Journal is now being achieved in The U.S. National Library of Medicine (NLM). This is very important in knowing that Justin’s HIV Journal has hit an important milestone and has made an impression on those that can influence public health in some way. I’m very humbled by this honor and I really hope that when Justin’s HIV Journal has been archived that it will teach the present what may happen in the future.
There are many people that do not understand that infectious disease such as HIV, is never the end. HIV is but one disease, and trust and believe there will be others, that will cost many people their own lives.
Thank you so much for all that have read and follow my blog and my YouTube Channel. All the encouraging words far outweigh any negative comments I have received or will receive in the future. I am proud of the progress that public health has made in the past decades. We must all pick our battles and it’s better to look at the future positives than the past negatives. But we must not forget and learn from those past negatives to have a better future for public health. (See letter below)
The U.S. National Library of Medicine (NLM) has selected your website for inclusion in the Library’s web archive collections as part of its mission to collect, preserve, and make available to the public materials that provide information in medicine and public health, and document their histories.
The following URL has been selected: http://justinshivjournal.blogspot.com/
NLM’s web archive collections are important because they contribute to the historical record, capturing information that could otherwise be lost. With the growing role of the web as an influential medium, records of historic events could be considered incomplete without materials that were "born digital" and never printed on paper.
For more information about NLM’s web archive collections, please visit our website http://www.nlm.nih.gov/webcollecting/
If you have questions, comments or recommendations concerning the web archiving of your site please e-mail NLM’s Web Collecting and Archiving Working Group at firstname.lastname@example.org at your earliest convenience.
Redacted Name, on behalf of the NLM Web Collecting and Archiving Working Group
Redacted Name, Digital Manuscripts Program, National Library of Medicine
Redacted Address | Bethesda, MD 20894
Phone: XXX-XXX-4506 | E-mail: email@example.com
Tuesday, November 7, 2017
In public health we know that when a natural disaster occurs it affects people living with chronic illnesses. HIV/AIDS itself is a disaster and compounding it with natural disasters like hurricanes will only hurt attempts at prevention, treatment, and livelihood. People need advice in times like these and I personally have been through a natural disaster that has affected me. There are things that people must keep in mind when dealing with a natural disaster, like the recent Hurricane Harvey, especially if they are infected with a chronic illness.
Please click here or the link below to get some pointers on how to stay health in a natural disaster
Thursday, October 19, 2017
Rosacea My Story
5 years ago, I made a blog video on my struggles with Rosacea. If you missed the post let me first tell you about what Rosacea is a chronic disease and skin condition. It causes inflammation and visible strained blood vessels in a person’s face. In my face it caused redness and small, red, pus-filled bumps. Eye problems. About half of the people who have rosacea also experience eye dryness, irritation and swollen, reddened eyelids. I also have eye issues. In some people, rosacea's eye symptoms precede the skin symptoms. Rarely, rosacea can thicken the skin on the nose, causing the nose to appear bulbous (rhinophyma). This occurs more often in men than in women.
However, evidence appears to be mounting that an overabundance of Demodex may possibly trigger an immune response in people with rosacea, or that the inflammation may be caused by certain bacteria associated with the mites. But every person carries these mites on their face. But people with Rosacea have more mites on their facial skin surfaces than most. Also let me make sure I tell you that Rosacea is NOT CONTAGIOUS.
Rosacea comes in outbreaks that are usually triggered by something. Some of the triggers that cause Rosacea outbreaks are emotional stress, sun exposure, Drugs that dilate blood vessels, spicy food, hot drinks, including some blood pressure medications, hot and windy weather, exercise and alcohol consumption.
It hurt me so much physically and definitely hurt my self-esteem (mentally and emotionally). I would sometimes not want to go to functions because I had an outbreak. People would point it out as if I didn’t see it, it was somewhat horrifying. I had to turn down photoshoots because I was ashamed of what I looked like. Let’s just say photoshop became my friend.
Rosacea treatment that works
For 5 years I would get outbreaks. At first, I used something called Metro Gel and it dried up my skin. The Metro Gel was uncomfortable and wasn’t strong enough. The second try at treatment was a topical medicine called Rosacea Treatment Gel that can be found over the counter. This did help my Rosacea better than the Metro Gel ever did. I was speaking with a friend of mine Debbie, and I had no idea that she suffered from Rosacea as well. I asked how she did it because I had never seen her have an outbreak at all. She told me about Oracea (Doxycycline) and that I should talk to my doctor about it. So, I called my doctor asked if it would interfere with any of my HIV medication (Odefsey) and he said if should be fine. You have to take a lot of water and decrease your exposure to the sun. Currently, there is no cure for Rosacea BUT I haven’t had an outbreak since being on Oracea this year. Since I started the medication and have not had any issues.
Sometimes people living with HIV have to worry about being susceptible to more infection, illness than people who are not infected with HIV Rosacea is no exception.
Justin's HIV Journal: Panel Discussion HIV in the News & Meeting Jeanne White-Ginder (Ryan White's Mother) (Video)
I was invited to Speak on a Panel called, “HIV in the News” by Philadelphia FIGHT Community Health Centers for their End AIDS: The HIV Prevention and Outreach Summit during AIDS Education Month. I found that it was very informative because there were different prospectives on the panel. Cherri Gregg who is a reporter for KYW Newsradio and Christopher “Flood The Drummer” Norris CEO of Techbook Online were also on the panel. and from Philadelphia FIGHT the moderator was good friend and colleague, Chip Lewis. There were several questions that were fired at the panel. Sensationalism played a big part of the conversation between the panelist. I came from the place of making sure we as people who put news out on HIV put it out for the right reasons. The opinion was very mixed. Also, the story of Charlie Sheen came up and I said it was both good and bad. With Charlie coming out (forcibly) of the HIV closet there was a spike in HIV testing. But then as he became more vocal it became a shit storm, especially with him and his crazy doctor. All in all, I loved the panel and we may have had different opinions on some issues we all respected each other because we know what an important role we play in the HIV realm.
I wanted to not only focus on the panel, but also check on other things that the summit had to offer. I walked about a looked at the portion of the AIDS Quilt that they had. It seems to not matter what part, where or when I see a portion of the quilt it touches me and sometimes I cry. It sometimes puts my own mortality in prospective. Sometimes it makes me wonder if I will have a panel someday. Of course, what I would like is that there is a cure for HIV and I live long enough to not only see it but take it. A lot of us that work in the world of HIV wouldn’t know what to do next if there a cure but until we get to 0 infections we still have a lot of work ahead of us. Another highlight was meeting Ryan White’s mother, Jeanne White-Ginder. I had never formally met her but I had always wanted to. I have heard her speak on some occasions. Every time she speaks at an event she played a video and it always touches me. It a video of her son Ryan White and the late Michael Jackson's song, Gone to Soon.
Ryan White was the poster child for AIDS when he challenged his local school when they ban him from going to school after his diagnosis was widely known. Important dates on White’s activism and legal battles are on June 30 Superintendent James O. Smith denies White admittance to school. Aug. 26th First day of school. White is allowed to listen to his classes via telephone. Oct. 2School principal upholds decision to prohibit White. Nov. 25 Indiana Department of Education rules that White must be admitted. Dec. 17 The school board votes 7–0 to appeal the ruling. Feb. 6 Indiana DOE again rules White can attend school, after inspection by Howard County health officers. Feb. 13 Howard County health officer determines White is fit for school. Feb. 19 Howard County judge refuses to issue an injunction against White. Feb. 21 White returns to school. A different judge grants a restraining order that afternoon to again bar him. Mar. 2 White's opponents hold an auction in the school gymnasium to raise money to keep White out. April 9 White's case is presented in Circuit Court. April 10 Circuit Court Judge Jack R. O'Neill dissolves restraining order. White returns to school. July 18 Indiana Court of Appeals declines to hear any further appeals.